Your Parkinson’s Voice (Essays)

This is a collection of essays talking about the experience of Parkinson’s.

Please submit your entry below!

  • Parkinson’s Thanksgiving

    Steve Walsh (originally posted on GiveGab 11/23/2018)

    Hope everyone had an enjoyable Thanksgiving with friends and family. I just wanted to share one special Parkinson’s “thanks”. I’ve heard this sentiment expressed in a variety of ways but they all have the same meaning. While none of us are thankful that we have PD, we are all thankful for the special people who have become part of our lives through ... Read more...

  • Parkinson’s Pet Peeve #2 – Nobody DIes From Parkinson’s

    Parkinson’s Pet Peeve #2 – Nobody dies from Parkinson’s Disease

    Steve Walsh 12/15/19

    If you have been a PWP (person with Parkinson’s) or a caregiver for any length of time you have likely heard that nobody dies from Parkinson’s Disease (PD). In my case I first heard this phrase from my neurologist when he delivered my diagnosis. I suppose it was meant to be comforting but it wasn’t. Another phrase you are apt to hear ... Read more...

  • A Change in my Life

    A Change in My Life

    Steve Walsh 11/24/2019

    Its that time of year again. The days are getting shorter. The leaves are changing colors and the temperatures are getting colder. It’s November and Thanksgiving is right around the corner. For some Thanksgiving means parades, football on TV, and turkey dinner. Others may view it as the beginning of the Christmas shopping season. Whatever it means ... Read more...

  • But you look good – A Parkinson’s Pet Peeve

    But you look good – A Parkinson’s Pet Peeve

    Steve Walsh 9/27/19

    If you’ve been a PWP (Person with Parkinson’s) for any length of time you most likely have heard something like this –“Sorry to hear you have Parkinson’s, but hey, you look good”. The first time you hear it you’re taken aback. You wonder what they were expecting you to look like. As you continue to hear it you may think to yourself “If ... Read more...

  • The Honeymoon is over

    The Honeymoon is Over

    Steve Walsh 9/24/19

    One of the first things I learned upon receiving my Parkinson’s diagnosis is that there is a period of time following diagnosis that is frequently referred to as the Honeymoon period. My understanding of the Honeymoon period is that during this period the patient’s symptoms are reasonably well managed with medication while allowing the patient to continue to maintain their lifestyle. Depending upon a ... Read more...

  • My First Five Years

    My First Five Years

    Steve Walsh 8/13/2019

    It hardly seems possible. It was 5 years ago during our annual family vacation in the UP that I first heard the words “I think you have Parkinson’s”. It was our daughter Jessica (a nurse) who diagnosed my Parkinson’s simply by watching me walk. Jessie lives in Utah and had not seen me since Christmas. The changes that were so subtle and gradual to me were glaring to ... Read more...

  • Midnight Musings – Chapter 3 I Gotta Get it out

    Steve Walsh 2/22/19

    Now that I have given in to the urge to write, I feel like I need to do something with it. As I mentioned in my last essay – I Feel the Need. The Need to Write? – my first inclination is to figure out why I am feeling that I need to share my writings. So I put Cat Stevens’ Greatest Hits on the turntable, grabbed my notebook and started ... Read more...

  • Midnight Musings Chapter 2. I Feel the Need. The Need to Write?

    Steve Walsh 2/22/19

    At different times in my life I have been encouraged to keep a journal. I started a few times but never really got into it. My entries always seemed to gravitate towards being factual accounts of the days events. After awhile I would lose interest and that would be the end of that.

    With ...

  • Midnight Musings – Chapter 1 Beer Goggles

    by Steve Walsh 2/22/19

    A few years ago there was a country song called “Billy’s got his Beer Goggles On”. The premise was that after Billy had a few beers the world began to look differently to him. The girls got prettier and  were even nice to him. Suddenly he was a great dancer and an even better singer. Of course after he got home and slept it ... Read more...

  • Midnight Musings

    by Steve Walsh 2/22/19

    As with many Parkinson’s patients there have been times when I wake up in the middle of the night and not be able to get back to sleep. During these periods of interrupted sleep I often find myself thinking of topics that pop into my head. Often times I get so absorbed in the topic that it makes it even more difficult to get to sleep.

    I’ve talked to several PD ...

Comments are closed.