Your Voice – from our Parkinson’s Community


Your Voice is a forum for letters or articles submitted to the Parkinson Center by people in the Parkinson’s community. When we are passed on informative articles or experiences, we will post it here. Please add your thoughts and comments!

 

  • Curt and Bok-Soon Continued Chapter 2

    Our Story
    Curt and Bok-Soon Continued

    Chapter 2

    About seven (7) years ago, during our daily walk, I noticed that occasionally my left foot would scuff the pavement. This occurred more predominantly when I became a little tired. During a scheduled visit to our family doctor, I mentioned this to him, and he suggested that I have a brain MRI just to ... Read more...

  • Midnight Musings – Chapter 3 I Gotta Get it out

    by Steve Walsh

    Now that I have given in to the urge to write, I feel like I need to do something with it. As I mentioned in my last essay – I Feel the Need. The Need to Write? – my first inclination is to figure out why I am feeling that I need to share my writings. So I put Cat Stevens’ Greatest Hits on the turntable, grabbed my notebook and started ... Read more...

  • Midnight Musings Chapter 2. I Feel the Need. The Need to Write?

    by Steve Walsh

    At different times in my life I have been encouraged to keep a journal. I started a few times but never really got into it. My entries always seemed to gravitate towards being factual accounts of the days events. After awhile I would lose interest and that would be the end of that.

    With ... Read more...

  • Midnight Musings – Chapter 1 Beer Goggles

    by Steve Walsh

    A few years ago there was a country song called “Billy’s got his Beer Goggles On”. The premise was that after Billy had a few beers the world began to look differently to him. The girls got prettier and  were even nice to him. Suddenly he was a great dancer and an even better singer. Of course after he got home and slept it off ... Read more...

  • Midnight Musings

    by Steve Walsh

    As with many Parkinson’s patients there have been times when I wake up in the middle of the night and not be able to get back to sleep. During these periods of interrupted sleep I often find myself thinking of topics that pop into my head. Often times I get so absorbed in the topic that it makes it even more difficult to get to sleep.

    I’ve talked to several PD friends ... Read more...

  • My PD Story – Chapter 6 A Fighter’s Prayer

    Steve Walsh (originally posted on GiveGab 11/11/2018)

    Like many PD patients I frequently have trouble sleeping. I usually don’t have trouble falling to sleep but I often wake up in the wee hours and am unable to get back to sleep. It was during an extended sleepless period last night that the following prayer came to me – not all at once but gradually throughout the night. When I ... Read more...

  • My PD Story – Chapter 5 “Good News/Bad News”

    Steve Walsh (originally posted on GiveGab 10/27/2018)

    I’m sure we have all been in a situation where we have been presented with the following. “I have good news and I have bad news. Which would you like first?” Sometimes the good news and the bad news are the same.  For example, many of us PD patients have heard the following. “The bad news is you have Parkinson’s. The good ... Read more...

  • My PD Story -Chapter 4 The Journey Continues

    Steve Walsh (originally posted on GiveGab 9/8/2018)

    Before I get too far in my PD Story I need to let you know what to expect as we go forward. The first thing I need to point out is that I will be posting these reflections on a stream of consciousness basis. When things pop into my head that I want or need to share I’ll attempt to capture them ... Read more...

  • My PD Story – Chapter 1 The Diagnosis

    Steve Walsh (originally posted to GiveGab 9/3/2018)

    It was late summer 2014. I had already begun counting the days to my retirement in November. A few weeks earlier during a family vacation our daughter (an RN) Jessie had spotted the symptoms – shuffling gait, left arm not swinging as I walked –  and suggested I might have Parkinson’s Disease. Now I was sitting in the neurologist’s office ... Read more...

  • My PD Story – Chapter 2 Navigating the Stages of Grief

    Steve Walsh (originally posted on GiveGab 9/3/2018)

    People often compare receiving a life altering diagnosis with losing a loved one. In a sense that is exactly what has happened. The patient and their loved ones have lost their “pre-PD” family member or friend and despite their best efforts that person is not coming back. The question then becomes how do we move forward.

    There are several models outlining ... Read more...

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